Haley Is My Hero
Haley's Birthday Beach Bash
Haley will turn 13 on August 20th, please come out and celebrate! For a young lady that has no true wants or needs. Just coming out to support the cause would be "present" enough. If you can not attend you can Donate Here!
Please join us!
Enjoy a beautiful evening of music and family fun on the shores of the Rapphannock River. Listen to the sounds of James Justin, Legacy and Spreading Joy and watch the sunset. Willaby's will be selling food, soda, beer and wine. If you are unable to join us on our day, but would still like to make a donation to the Dravet Syndrome Foundation in honor of Haley's birthday CLICK HERE!!
Haley on Dateline!!
If you missed the "Growing Hope" episode on June 7, 2015 that featured the Virginia families fighting to change a law, you can watch the six parts here!
We were able to change laws in our state, but need help at the federal level. Please contact your congressman about HR 1635 and your senator about S 1333.
Facebook Like Button
Share on Facebook